Monday, March 10, 2014

Update: Yep....Still not in control of this journey

Today was another day of being told I wouldn't be having chemotherapy.  I was hoping I would be given the green light, but in truth, I had a hunch I would be told we need to wait to figure out the source of my fever.

I have had a low grade fever for about a week now.  Nothing really remarkable, but for a cancer patient in the midst of chemotherapy, 100.8 (for my clinic and doctor) is considered worrisome, and  more investigation is needed.   My temperature has been all over the place, coming and going, higher and lower than that listed, but present.

Last Friday when I went in for chemotherapy cycle # 5, after many blood draws, tests, chest x-ray, other tests, and everything coming up negative, it was decided that most likely I have a some kind of virus.  Rest and Tylenol was prescribed for the weekend with hopes that I would feel better by Monday (today) and be able to have treatment.

Over the weekend, I developed swelling and pain at one of my biopsy sites from 3 months ago.  Although my fever had come down and was barely there, my discomfort and pain level increased.  Even today, the swelling was worse.

The plan going forward, is that chemo is on hold until I can get healthier.  Delaying chemo is not ideal, but it necessary to achieve that tricky balance in what my body can and cannot handle.  Since lymphoma is a blood cancer involving white blood cells, my infection-fighting army is downsized with each chemotherapy cycle, as treatment not only kills the cancer cells but the healthy white blood cells as well.

On Thursday I have an appointment with the surgeon to get his input as to the next steps.  It may be likely that the best approach will be a day surgery to drain and clean the affected site if needed, a course of  antibiotics and a short time to heal before I continue with treatment.  I'll know more on Thursday.

I'll be candid, these last few days I have felt frustrated and annoyed, even inconvenienced.  I had everything so neatly planned out and was anticipating being done with chemotherapy by the end of the month.  Now, it is up in the air just a bit.  I was informed early in the process that it is not uncommon to have delays or interruptions, but I'll confess, I have had it in my brain (and have been determined) to just keep marching through therapy without any hiccups.Which I have been doing up until now.  The doctors and nurses often have remarked how well I'm responding, that I have 'good color', and that my body seems to be handling the chemo so well. Everything has been going so smoothly and results have been so great that I have been lulled into a false sense of  'everything going as planned' but somewhere in the midst of things, I once again took hold of the reins, thinking I was in control.

Here I am today,  presented with yet another opportunity for growth as I'm brought face to face with the reality that I still do not have control over this journey, despite however much I would like to, or fool myself into thinking I do. (please refrain from saying  "Well duh!" or leaving a comment of this sort). Once again, I am making the choice to lean into this delay, and all that follows in the coming days, trusting and resting in the knowledge that this is all for my good, and that God is able to work out the timing of everything--and then help me be okay with it all too!

5 comments:

  1. Cheryl, you are strong and brave. Thank you for sharing this deeply personal info. I have been unable to talk to you about this until now, afraid to read your blog, even. Many years ago I lost a dear friend. She had a rare leukemia. I have been thinking of you so much, and your name is at the top of my prayer list. I hope you will continue to write your blog. Sometimes we have no idea how God is using our situation to help someone else. You are encouraging to me. Love

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  2. Cheryl, just got a text from Craig and Eva asking how you are doing, saying they are praying for you. And we are too. Praying whatever is causing your fever will be healed. That your cells can and will fight what needs to be fought in order for your healing to progress to full healing. Also praying for your heart, that you will feel God's presence in a profound and loving way, full of hope and healing. Love, Valerie & Keith

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  3. Cheryl, Craig and I remain with you on your journey. We read and re-read your posts this am and spent time in prayer for you. Craig, who loves to sing and worship in his truck, just heard this song yesterday and believes it is a song just for you.
    The title of the song is "Rest in You" by Hillsong United. It can be found on line.
    Here are the lyrics:

    Your faithfulness endures always
    Where mountains fall and reason fails
    And You calm the raging seas
    And You calm the storms in me, again

    All I know is I find rest in You.
    All I know is I find rest in You

    My heart will praise throughout the night
    Where singing seems a sacrifice
    Your grace is all I need
    Your grace is all I need.

    The printed lyrics don't do the song justice. We hope you will be able to listen.

    We listened while we prayed and felt His presence very near.
    We pray that God's healing presence will be near you as you "embrace the new" and that He will give you just enough light for the next step you are on. We pray also that your body will continue to fight for you as you walk out this day and each day ahead.. one at a time. If we might dare to say ..we believe that GOD IS VERY PROUD OF YOU..as we both had a picture of you standing directly in God's light, arms open to receive His grace.
    We will be praying this Thursday for a good report and His peace to be with you. With great affection... Craig and Eva

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  4. Cheryl, I too am a follower of Jesus and wanted to let you know I am offering so many prayers up for your healing and recovery. Thanks for sharing your journey with such grace and insight. You seem as I had thought from our brief meeting times at Weight Watchers to be a beautiful woman with much to offer. Blessings on your week and away with your fever. You and God have soo much to do together. Beth B

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  5. I continue to think of you and offer up so many prayers for you and your family. I hope Easter was a time to celebrate family and God's love for you through His resurrection. Prayers for your improved health and may the Holy Spirit rest gently in your heart as you continue this journey. Hugs to you! Beth B

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